Saturday, March 28, 2009

Triad/Triangle Paver For Megan Grace Info.

Hello Ladies,
I just wanted to give you guys an update on the Triad/Triangle fundraising front.

We have decided to donate a paver at the new Junior League Headquarters. If you do not know Amber is a memeber and this year is our big fundraising year.

She was going to do this herself so we thought this would be a great idea for us to do for them. We will hold off on the inscription for now. Since we don't know the fianl word on her diagnosis, etc.

The cost is $250. We will need to move on this soon as the deadline is approaching. I will let you know a definate date as soon as I have one.

Here is the website for the League:

It is part of the Legacy Campaign.

More info. to come shortly.

Friday, March 27, 2009

Johns Hopkins

This is where we are getting our second opinion. The top hospital in the country which just so happens to have a center that specializes in just our diagnosis. It's called the Greenberg Center for Skeletal Dysplasia.

We will be heading up there on April 9th and the appointment is actually April 10th which is Good Friday.

Please let our luck turn around. We received our diagnosis on Friday the 13th. Maybe we will receive the miracle we have been praying for on Good Friday.

Wednesday, March 25, 2009

Megan Grace's April Schedule

Busy. Very busy.

April 7th~ Second opinion at UNC
April 14th~ Fetal Echocardiogram and a regular OB appointment
April 21st~ Daddy's birthday, U/S at the MFM doctor in Greensboro, and a meeting with the genetic counselor
April 25th~ Family Wedding
April 26th~ Walk/Run in Charlotte in Megan Grace's honor

All of this and we are considering dropping the second opinion at UNC and going to Johns Hopkins in Baltimore. I've been in contact with them and am in the process of getting some questions answered to be sure it is a good decision. I'll keep you all posted.

Monday, March 23, 2009

Charlotte Run/Walk Info.

Mark your calendars!!!

Megan's Walk
Date: April 26th
Time: 10:00 a.m.
Place: Mallard Creek Greenway (see link below) Meet in Mallard Creek Elementary School's Parking Lot
Donation: As much as you'd like to give

Wear Purple or Gold to show your support (in honor of ECU's school colors).

Speed and Toads

Thursday, March 19, 2009

A turning point

Yesterday was a definite turning point in my overall mood and attitude towards this situation.

It was the first time I had really been able to move past the news we had been given on move on to exploring other possibilities. The people who know me really well know that I'm one of the first people usually to question a doctor and even find another one to question. Due to the news we had received I hadn't gotten there yet until yesterday.

When I woke up my mood was considerably better and I started to explore the internet for other options which was when I stumbled upon the link below. Another lady I had been talking to also sent me a story just like it that was about someone she knew so the wheels started churning.

All of this was going through my head yesterday on the way to the doctor. We sat down with her and she informed us that our case is now part of a group of cases that go to committee each month. They had met since Friday and had discussed are case and guess what? They are totally at a loss as to what is actually wrong with her.

DISCLAIMER: The prognosis has not changed because it is still based on what they saw from Friday.

As part of the conversation I pointed out that the possible choices for diagnosis are very broad which in turn leaves a large chance of error in the diagnosis and she agreed.

We left the appointment essentially on the note that this is in God's hands and he could touch her over the next month and the echocardiogram and u/s could show significant improvement. It could also go the other way. Only time will tell what God has in store but I ask that you all keep praying as we will that little Megan is a fighter and that this game isn't over yet.

So right now we are just staying positive, hoping, and praying for a miracle.


Steve, Amber, and Megan Grace

Wednesday, March 18, 2009

Nothing is impossible....

Hello everyone. Amber sent me a link to this blog earlier today. I wanted to share it with you. Amber and I talked about it and we aren't trying to fill everyone with false hope. But, this is just one miracle and we all know God can also create a miracle for Megan Grace too.

Please keep the prayers coming.

"For with God NOTHING shall be impossible" (Luke 1:37)

There are no words....

To be able to express how thankful Steve and I are for all of the continued support and prayers during this difficult time.

We are hanging in there. Today we are meeting with one of our doctors to go over our care going forward and to try and get answers to the many questions that we have about what we are facing.

The support we have received both IRL and from the fabulous Nest/Bump community has been amazing. Honestly, we have survived some portions of the last week by the strength God has provided and from all of the posts, emails, phone calls, etc. that we have received.

It's a long road and we are just at the beginning but I know we will make it through this and be stronger for it one day. We are so in love with our little Megan Grace and we can't wait to meet her even if it is for only a short time.
Thank you for continuing to think of us ladies. It really does mean a lot and I hate that we can't thank each and every single person individually but just know we appreciate it.

Tuesday, March 17, 2009

I just received an note from a friend on another message board I am on. She wanted to know if this was my friend on this blog...

Amber and I joked the other night that this was bigger than either of us more ways than one.....

I am still amazed that is just happened 6 days ago.....and how far and fast the word has spread. And the love, support, prayers and well wishes...

Amber was so worried she was going to be "alone" in all of it...Girl, you are ANYTHING but alone.

Amber we love you so much. And little Megan Grace too.
Welcome Nesties to our blog for Amber, Steve, and Megan. Please feel free to leave your comments, well wishes, hugs, prayers, thoughts...

We will be updating it with messages from Amber, the fundraisers, and everything else...

So, let's get it going...